American Academy of Pedicatrics - New Jersey Chapter - National Resources for Pediatricians

National Resources for Pediatricians

Award-Winning Vendor Selected to Develop BabysFirstTest.org, the Nation’s First Online Clearinghouse of Newborn Screening Information

Genetic Alliance will collaborate with web technology and design firm Blenderbox to develop and implement BabysFirstTest.org, a streamlined, customizable, online newborn screening clearinghouse.

“We are proud to partner with such a high-caliber and imaginative firm to develop this urgently-needed resource,” said Natasha Bonhomme, newborn screening project director and Genetic Alliance vice president of strategic development. “Blenderbox has everything we look for in a partner, from their open and collaborative project management style to their staff’s unique blend of design and technology expertise. This collaboration sets us up to deliver a high quality solution to some of the challenges facing the newborn screening system.”

In 2008, the U.S. Congress passed the Newborn Screening Saves Lives Act to expand support, research, and education opportunities for newborn screening programs. As a result of this legislation, the Genetic Services Branch of the Maternal and Child Health Bureau, HRSA, HHS awarded a cooperative agreement to Genetic Alliance and partners to establish the Newborn Screening Clearinghouse, which will connect parents and healthcare providers with resources and information relevant to the four million newborns screened annually.

Genetic Alliance created a beta version of the awarded a cooperative agreement Newborn Screening Clearinghouse, which lays the groundwork for BabysFirstTest.org, in 2010. Currently, the website provides links to partner websites and utilizes interactive features—including a blog and RSS feeds of newborn screening news and tweets—for discussion of key topics and activities in newborn screening.

“My wife and I have sat in the genetic counselor’s office at NYU Hospital trying to understand complex genetic information and how it relates to the health of our daughter,” shared Jason Jeffries, Blenderbox chief executive officer. “We can speak from first-hand experience when saying that the information needs of parents as it pertains to the health of their children, and the capacity of health professionals to meet those needs, should be paramount in good systems of care. We are proud to develop a resource for an organization and a public health system with consistent beliefs.”

Founded in 1999 by husband-and-wife-team Sarah McLoughlin and Jason Jeffries, each of whom has an extensive background with interaction design and technology, Blenderbox specializes in services for education, nonprofit, and mission-driven organizations. The Brooklyn, NY-based firm’s roster of prestigious partners includes National Geographic, Defenders of Wildlife, The American Association for the Advancement of Science, The Hewlett Foundation, The Atlantic Philanthropies, and The Rockefeller Foundation. Among the many awards won by Blenderbox, in August 2010, one of the firm’s designs won the Interactive Media Awards (IMA) Best in Class Award in the ‘Arts/Culture’ category—the highest honor bestowed by the IMA.

The anticipated launch date for BabysFirstTest.org is September 1, 2011.

For more information about the Newborn Screening Clearinghouse program, contact Natasha Bonhomme at nbonhomme@geneticalliance.org.

About Genetic Alliance
Genetic Alliance improves health through the authentic engagement of communities and individuals. In this, our 25^th year, we celebrate innovation on our journey toward novel partnerships, connected consumers, and smart services. For more information about Genetic Alliance, visit http://www.geneticalliance.org.

Updated Norovirus Outbreak Management and Disease Prevention Guidelines
The material in this report originated in the National Center for Immunization and Respiratory Diseases, Anne Schuchat, MD, Director; and the Division of Viral Diseases, Jane Seward, MBBS, Acting Director.
Corresponding preparer: Aron J. Hall, DVM, Division of Viral Diseases, National Center for Immunization and Respiratory Diseases, CDC, 1600 Clifton Road, MS A-47, Atlanta, GA 30333. Telephone: 404-639-1869; Fax: 404-639-8665; E-mail: ajhall@cdc.gov.
Summary
Noroviruses are the most common cause of epidemic gastroenteritis, responsible for at least 50% of all gastroenteritis outbreaks worldwide, and a major cause of foodborne illness. In the United States, approximately 21 million illnesses attributable to norovirus are estimated to occur annually. Since 2001, when the most recent norovirus recommendations were published (CDC. "Norwalk-like viruses." Public health consequences and outbreak management. MMWR 2001;50[No. RR-9]), substantial advances have been made in norovirus epidemiology, immunology, diagnostic methods, and infection control. As molecular diagnostic techniques have improved in performance and become more widely available, detection and reporting of norovirus outbreaks have increased. Although the inability to culture human noroviruses in vitro has hampered progress, assessment of the performance of disinfectants has been facilitated by the discovery of new, cultivable surrogates for human noroviruses. In addition, the periodic emergence of epidemic strains (from genogroup II type 4, GII.4) and outbreaks in specific populations (e.g., the elderly in nursing homes) have been characterized. This report reviews these recent advances and provides guidelines for outbreak management and disease prevention. These recommendations are intended for use by public health professionals investigating outbreaks of acute gastroenteritis, including state and local health authorities, as well as academic and research institutions.

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